Julie sent me this: History Of Morgellons Disease: From Delusion to Definition. If the link doesn't work, copy and paste this https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5811176/
It's super important to read as it provides a summary of everything done to date and more significantly ties Lyme disease to Morgellons and the creation of the filaments made of keraton and collagen. My report, Lyme Disease Doesn't Scare Me Anymore, is now more important than ever.
What I found very very interesting is that they mention two studies with orap, Primizode, with Morgellons patients, "There has been only one randomized, double-blind, placebo-controlled study that evaluated the effectiveness of the antipsychotic drug pimozide.118 This study of a small cohort of eleven DI patients reported that pimozide was better than placebo at controlling formication, but was not better at controlling delusions of vermin infestation or excoriation.118 One Study of 14 DI/DOP/DP patients reported that although seven patients remained in remission19-48 months after pimozide treatment, four patients had no response to this antipsychotic medication.119 The variation seen in reported effectiveness in this study and the various studies reviewed here may have arisen from the fact that patients diagnosed with DI are a heterogeneous group of individuals, some of whom are truly delusional and some of whom are not."
FYI, formication is another word for symptoms of insects crawling under the skin. The second study has 7 of 14 patients achieving in remission for 19 to 48 months. I think that is an incredible feat considering diet was not a part of the treatment.
Personally, I had an amazing benefit using orap for Collembola in the late 90's and it's been listed it in my book since I wrote the first version in 2006. And since then have listed about a half dozen other medications that have been reported to me as beneficial--listed below.
Unfortunately, the researchers do not provide a theory for how this medication works, but it does, and it's not just a mental benefit. It actually does something to reduce symptoms--see a practical theory below.
Even more disappointing, all research at this time is only aimed at legitimizing Morgellons as a disease in hope of getting the CDC to wake up and take notice. If the CDC wakes up, we're no longer to be called "delusional," insurance will cover medical services, and prescriptions. Fact is there is no cure or recognized treatment for Morgellons. We're in the dark ages and our store of soaps, lotions, creams, gels, and supplements are getting the job done by deep cleaning the skin, building health, immune functioning, and diet.
How does orap work? That's the million dollar question. The ignorant answer the question by citing the"all too" obvious, "it's an anti psychotic drug and it must somehow affect your brain to mask the symptoms of biting and itching." Obviously, they never experienced orap or they would not even suggest such an ignorant idea--that's my opinion. Truth is, orap is not an anti psychotic drug. It's used for Tourette's syndrome which is not a psychotic disorder--it's a neurological disorder--see my blog update-- Too Much Knowledge Can Be Dangerous. It's like saying rats have four legs, cows have four legs, therefor rats are cows.
But back to the question, how does orap work? Some sufferers, myself included have noticed increased symptoms while being stressed out. When you are stressed out, your body produces hormones related with the flight or flight and they are adrenaline, noradrenaline and cortisol.
Cortisol is a bad actor. What happens is that the fight or flight is activated, not only when your life is threatened, which is very infrequently, but whenever your ego, family status, financial status, or when you feel these organisms attacking your body and you have no recourse. Cortisol is a fight hormone and if it's not used up to either physically fight or released by running, it accumulates in your body. It's a double edged sword since there's nothing to physically fight when your ego is threatened, financial status, family status, and so on, so cortisol runs rampant and messes up your sugar balance leading to all kinds of health issues. Cortisolcan be bad bad news.
Years ago there was a study done in England. It was referenced in a book, Mind As Healer, Mind As Slayer by Kenneth Pelletier. They found that the conductors on their buses had an higher incidence of heart attacks than the drivers did. What they determined is that the driver was in control of driving the bus to avoid mishaps whereas the conductors could not do anything to channel their cortisol.
I never made a strong connection between stress and symptoms of parasites, but Ann did, she writes,
Part of my struggle with Lyme Disease has been the parasitic co-infections that are emboldened by the spirochete bacteria. I contracted Lyme when, like so many in the #Me too movement, following a particularly abusive experience, I reached out for help, not only for myself, but advocating for a child who experienced the same. Rather than being believed, we were both criticized and ostracized instead. This experience exacerbated our PTSD into Complex PTSD. Our endocrine systems collapsed on a cellular level. I developed Lyme Disease and co-infections from a childhood tick bite. The child was ultimately admitted into a trauma facility and we both visited emergency rooms multiple times for unexplained fluctuations in blood pressure.
Five years later, both of our immunological systems are compromised. Stressful situations cause cortisol surges which, for me, activate a simultaneous surge in parasitic reactions. The very first day that I tried Orap however, I noticed that cortisol stopped surging. It felt like a cortisol blocker. Orap has been a life saver. The only side effect that I have had is a little bit of sleepiness. I control that by taking it before I go to bed. Thank you for introducing me to this anti parasitic.
Incidentally, my very reputable trauma therapist was afraid for me to try Orap since it is considered to be an anti psychotic medication, not knowing how if any way it might alter thinking. Cognitively I have noticed no difference. Physiologically, just as Judith Herman M.D. writes in her renown work on trauma, in Trauma and Recovery, she describes how trauma, years later, continues to control you on a physiological level. You don’t control it. Cortisol is produced when stress appears in life. The bio chemical responses cause cortisol to surge. I wonder if Orap wouldn’t help a number of PTSD victims.
Thank you for the work that you do raising awareness about various treatment protocols."
Is she right about orap blocking cortisol? I don't know for sure, but it makes a lot more sense than those who believe orap is only an anti psychotic and only masks symptoms. I thank her from the bottom of my heart for sharing her experience with orap and making the connection between cortisol and parasitic activation--should have been obvious to me, but it wasn't.
Her trauma therapist was concerned about her cognitive thinking. One possible side effect is that orap can make you excessively groggy. But if it does, there are other optional medications listed below.
What should you do? Print this research report, highlight the section near the end about orap in yellow, show your doctor, and ask for a prescription of orap without the all the crap about it being an antipsychotic med. Also print out the section in my book, Family Practice Notebook, which provides the dosage, or the list in my book, copied below, of other optional meds.
1.ORAP: 1 mg per day up to 3 mg/day if needed typically used for Tourette syndrome and motor tics
2. Zyprexa: 2.5 mg per day at bed time for up to six months with blood lipids checked after four mos typically used for schizophrenia and bipolar.
3. Doxepin: 10 mg once per day (duration unknown) typically used for anxiety
4. Abilify: 2 mg per day working up to 7.5 mg per day for 4 months and then back down slowly to 2 mg per day to stop. Typically for depression
5.Zolof: 25 mg once per day (duration unknown) typically used for depression/panic attack
6. Serequel 30mg typically use for bipolar disorder and schizophrenia
7. Lyrica (dosage unknown) typically used for seizures, fibromyalgia, pain from shingles
8.Risperdal: 1 ï¿½ mg to 2 mg per day (duration unknown) typically used for bipolar, schizophrenia
9.Naltrexone at http://ldnscience.org/ 3.5 mg at night time typically used for drug addiction
10 Wellbrutrin 5 mg twice daily typically used for depression, ADHD
11. Some have reported that over-the-counter allergy meds like regular Claritin, Claritin D and Vistaril may also have the same benefit.
And sometimes, more than one medication is required to produce results.
If your doctor wants to stay in the dark ages and refuses to help you, then consider working with our doctor, Dr. Su, with whom Ann consulted. If you choose to go that route, complete the attached questionnaire--even if you did it before--and return to me. I'll provide you with an update protocol and once you're on the protocol, you'll be given access to Dr. Su. Remember, the medication is not a substitute for either the King Diet or the protocol of supplements to build health and immune functioning. As you know these parasites are a serious matter and it make sense to throw everything at them that you can--not just one stone.